|photo courtesy Chemo Biyatch of http://chemobiyatch.blogspot.com/|
We loved Dr. Puckett. I had been told by some of his patients they loved him. Then others told me was kind of serious and reserved. Totally not that way with me. The resident noted it was my birthday and told me it was also Dr. Puckett’s birthday. He came in and I sang Happy Birthday to him, and told him it was mine too. In seconds, we were laughing, joking with each other and I thought he was pretty spectacular.
|C. Linwood Puckett|
Now the not so good.
I had one lymph node biopsied and it was positive. I don’t understand the role of chemo if not to kill cancer cells. So isn't it feasible that since it was only a few cells that chemo could have eaten the whole cluster? I know you aren't qualified to answer.
So I learned that at my surgery they will most likely do an axillary dissection and send the whole section of lymph nodes off to be checked. It will take 5 days to get the results from the pathology. What the plastic surgeon prefers to do is to NOT to do immediate reconstruction at that time.
For the BEST results he wants to wait and get the axillary lymph results. If I don’t need radiation then we would schedule a new surgery about 8 weeks later to start the reconstruction. :(
However under that same plan...with no tissue stretcher in place, if I do need radiation, he will not touch me until I am a YEAR post radiation!!!!! I held it together there but I was dying inside. They don’t have experience with my oncologist or surgery doctors. Dr Puckett is an University physician so he’s only used to University doctors.
I asked about going ahead and placing the expanders. Going ahead and doing a little expansion to give me Something for my clothes. He said we could do that. But he said often the radiologist will request they be removed for radiation. :(( sigh He said there was also the concern of how my skin would react to radiation. It could get hard and encapsulate the expander, making further expansion difficult.
If he places the expander, he can pump me up a bit, let me do radiation. But I would still have to wait an entire YEAR for the final expansions and implant surgery AFTER the four month settling time. He said there was the risk I could wind up with a hard knarly boob...not the best results.
So I talked it over with Kel. He is the only one besides doctors and nurses who see my boobs..altho right now that seems like a few hundred people. My final desire is to wear pretty bras and look normal in clothes. If I have a hard gnarly boob...undressed won’t bother me. So K and I decided that we were okay with the less than the plastic surgeon’s ideal results.
I called Dr. Bryer, the radiation oncologist. HE said he has never had to ask for a spacer to be removed to complete radiation. He's never asked someone to go for wait for reconstruction. I asked about encapsulation. (An inflexible pocket around the expander or implant). He told me there is the occasional issue but to keep in mind women who do not have radiation also have had the complication. It was up to DNA and skin type. IF I had to have radiation it would be the arm pit and skin, not deep into tissue like with a lumpectomy.
So it is crucial that I not have radiation. Please pray with me it will not be needed. However we have decided that I have will have the reconstruction and expanders placed. I will believe in faith that radiation won't be required. If it’s God's plan to me to have it anyway...well I will have a little boobies made of saline for an entire freakin’ year before I get the real thing. But it will be something!
I read a case of a woman who had not done a reconstruction. I don't know why. But she was extremely anal about being seen without her "boobs" on. One night while on a business trip the fire alarm went off at her motel. She threw on her clothes and ran out to the parking lot. She looked around and everyone else was in pjs and robes. She realized it had been more important to be seen with her boobs than dying in a fire. She got a reconstruction.
I told K I didn't need perfect looking boobs. I just needed to feel womanly in a bra and in a dress. Mom goes without her boobs at home. But if she knows company is coming she’s hitting the bedroom to put them on. I don't want to have to think about them that much.
So I have all that to think about.
The day got worse when we got home. Our sweet, old Pomeranian Bandit, was in respiratory distress. He had been struggling for 2 years, having the occasional seizure that was awful to see. He had been on prednisone for serious skin allergies over the years and we knew that would shorten his life. He was a pretty special, our old pomeranian we had him since he was 8 weeks old. He died that very night. Yes, the night of my birthday. I don’t know if we will ever celebrate anything again. That was wretched. He died in KJ's arms. We didn't know he was that close to death, but knew he was not doing well. We made arrangements for the vet to put him down and then Bandit acted a little perkier so we thought maybe we made a hasty decision. But he quickly decompensated and died before the vet could arrive. It was awful to watch, and Bandit was more KJ's personal companion than mine....KJ sobbed. I cried and I'm sad, but KJ's heart broke.
It’s been such an awful week. I'm weepy and sad. It doesn't take much to get me crying. Becky sent me a picture mail of mom sitting up in her hospital bed and grinning. Yep I lost it!